Minimum of 5 years of relevant experience in related roles within the pharmaceutical or biotech space
Experience in rare disease, buy bill, specialty pharmacy, and provider/hospital processes
Strong understanding of the evolving patient access landscape
Exceptional written and verbal communication skills
Requirements:
Act as the primary point of contact for patients and caregivers, providing clear and compassionate education
Oversee and streamline access coordination, including affordability program enrollment and site-of-care logistics
Deliver personalized patient care, develop tailored education and resource plans
Collaborate extensively with internal teams to enhance patient experience and address access challenges
Job description
Scholar Rock is a late-stage global biopharmaceutical company focused on developing and commercializing apitegromab for children and adults with spinal muscular atrophy (SMA) and other rare, severe, and debilitating neuromuscular diseases. As a global leader in myostatin biology, a field focused on proteins that regulate muscle mass, the Company is named for the visual resemblance of a scholar rock to protein structures. Our commitment to unlock fundamentally different treatment approaches is powered by broad application of a proprietary platform, which has developed novel monoclonal antibodies to modulate protein growth factors with extraordinary selectivity. Scholar Rock works every day to create new possibilities for patients through its highly innovative anti-myostatin program, including opportunities in additional rare neuromuscular diseases. Learn more at ScholarRock.com and follow @ScholarRock on X and on LinkedIn.
Summary of Position:
The Rx Onboarding and Care Coordinator (ROCC) is a patient journey expert focused on delivering personalized education and comprehensive care coordination to support patients and families throughout their spinal muscular atrophy (SMA) treatment journey. Acting as a trusted patient advocate, the ROCC serves as the central point of contact, bridging communication between patients, caregivers, healthcare teams, and advocacy groups to support appropriate patients at all stages of the treatment journey. This role focuses on the patient experience through uncovering individual needs and delivering customized tools and resources to address them. The ROCC will be the connection to resources that address access, affordability, and logistical challenges and will work cross-functionally to identify and compliantly remove non-clinical barriers. With an emphasis on empowering patients and caregivers, the ROCC will lead with empathy to provide tailored education and connections to practical solutions and tools that effectively address non-clinical barriers to access and improve patient experience.
The ROCC role offers a unique opportunity to make a significant impact on the lives of individuals living with a rare neuromuscular disease by ensuring access, support, and continuity of care throughout their treatment journey. The ROCC will be a critical member of the broader Patient Access and Experience Team.
Position Responsibilities:
Act as the primary point of contact for patients and caregivers, providing clear and compassionate education on the disease state, therapy options, access pathways, and available support services to empower them throughout their treatment journey.
Compliantly oversee and streamline access coordination, including affordability program enrollment, benefit verifications, prior authorization process, and site-of-care logistics, while ensuring timely therapy initiation and adherence. Proactively address challenges to simplify the process and provide comprehensive support.
Deliver personalized patient care, conduct in-depth engagements to identify individual needs, develop tailored education and resource plans. Provide hands-on logistical assistance, including in-person support at treatment centers when necessary.
Collaborate extensively with internal teams (Sales, Field Reimbursement, Advocacy, Marketing, etc.) to enhance patient experience, address access challenges, and align program operations with organizational goals. Handle escalated issues promptly to maintain a consistent, high-quality patient experience.
Coordinate with external stakeholders (care coordinator, office staff, infusion site, etc.) to identify, anticipate and address patient access challenges. Ensure patients and their healthcare team have the necessary resources and education to effectively navigate access to therapy.
Monitor market trends, payer landscapes, and regulatory shifts to anticipate challenges, adjust strategies, and communicate updates to patients, caregivers, healthcare teams, and internal teams.
Build strong networks through advocacy group involvement, rare disease-related events, and national conference attendance.
Maintain a deep understanding of patient and community needs, available resources, and national access dynamics to support patients effectively at the regional level with tailored education and assistance.
Adhere to legal and regulatory standards (HIPAA, FDA, OIG), maintain awareness of compliance policies, and accurately record and report adverse events and product complaints.
Candidate Requirements:
Minimum of 5 years of relevant experience in related roles within the pharmaceutical or biotech space; prior patient support, account management, reimbursement, HUB/patient services and/or market access experience preferred.
Demonstrated ability to effectively engage with patients, caregivers and healthcare professionals, demonstrating empathetic listening skills to build trust and foster ongoing relationships.
Experience in rare disease, buy & bill, specialty pharmacy, and provider/hospital processes is required; prior launch experience preferred
Experience with specialty or high-cost therapies in chronic or acute care settings is required, with a strong preference for those experienced in launching new therapies into infusion sites/home infusion.
Experience with complex patient-case management is required.
Strong understanding of the evolving patient access landscape to include payer, PBM, and SP interdependencies. Proven expertise and experience with government and private payers, addressing access/reimbursement challenges and navigating complex insurance landscapes.
Ability to work independently, manage multiple priorities, and demonstrate strong organizational skills.
Familiarity with HIPAA, FDA, and OIG guidelines.
Exceptional written and verbal communication skills to manage individual patient cases and report meaningful activity regionally.
Strong interpersonal skills, rooted in patient-centricity and flexibility to meet evolving patient, caregiver, HCP, and organizational needs.
Bilingual (Spanish-speaking) preferred.
Location and Travel Requirements:
Role is field based, requiring up to 60% travel
Candidate must reside in territory
Scholar Rock is an Equal Opportunity Employer. We celebrate diversity and are committed to creating an inclusive environment for all employees.
