Contractor, Patient Advocacy and Medical Affairs

Position Overview

A biopharmaceutical company is seeking a Contractor, Patient Advocacy and Medical Affairs Specialist to build strong relationships with patient communities and lead strategic collaborations with patient advocacy organizations across therapeutic programs. Reporting to the Vice President of Clinical Science, this role will also work closely with the Clinical Development team to support additional medical affairs initiatives, including conference and publication planning, Key Opinion Leader (KOL) coordination, and clinical study support as it relates to patient engagement.

The ideal candidate may be remote but should be able to be on site for key events and be willing to travel ~15% of the time, including conferences and patient advocacy meetings.

Responsibilities

• Support and help execute the company’s patient advocacy strategy and patient-centered philosophy.
• Identify, build, and maintain strong relationships with patient advocacy communities, particularly in rare disease, and support sponsorship opportunities.
• Ensure the patient experience is heard internally to help shape clinical and regulatory development planning.
• Build educational materials for patient communities around genetic medicines and identify needs or opportunities for support.
• Coordinate, plan, and manage budgets for patient advocacy events and speakers.
• Collaborate cross-functionally with Clinical Development, Corporate Communications, and Legal teams as needed, ensuring compliance around stakeholder interactions.
• Assist with KOL coordination, as well as conference, publication, and external presentation planning activities.

Qualifications

• Minimum B.S. or B.A. in Biology, Health Sciences, Business, Marketing, or a related field.
• Minimum 2 years of experience in patient engagement or organizational strategy with advocacy groups in a biotech or pharma setting; rare disease experience strongly preferred.
• Familiarity with medical affairs and scientific communication planning, including KOL engagement and conference/publication planning activities, preferred.
• Strong interpersonal, oral, and written communication skills; ability to quickly build rapport with diverse stakeholders. Ability to build trust and rapport with patients, families, and caregivers through exceptional listening skills.
• Understanding of compliance requirements for patient advocacy and familiarity with the drug development process; genetic therapy experience a plus.
• Excellent organizational and collaboration skills with the ability to manage multiple projects in a matrixed environment, including event planning.
• Ability to travel occasionally to patient advocacy events or conferences.