Match score not available

Unlock Premium Benefits Today!
🚀 Elevate your career with priority access.
Stand out to top recruiters with Jobgether Priority Access:
  • ✅ Top Match: We help you identify job offers where you're a perfect fit.
  • ✅ Exclusive Referral Service: Connect directly with recruiters as a Jobgether Certified Premium User.
  • ✅ Personalized Feedback: Receive feedback and expert guidance on applications, and have your profile manually reviewed.

Start Your Free Trial Now!

Start my free trial

Patient Advocate Hypoparathyroidism - Remote (Part-Time 20 Hours a Week)

Remote: 
Full Remote
Contract: 
Full time
Work from: 
Illinois (USA)

Offer summary

Qualifications:

2+ years of pharmacy, customer service, or healthcare experience, Knowledge or experience with hypoparathyroidism, Strong written, verbal, and presentation communication skills, Ability to build relationships with patient advocacy organizations and individuals living with rare diseases..

Key responsabilities:

  • Engage with the hypoparathyroidism community and build relationships with patients and advocacy organizations.
  • Collaborate with internal teams to improve operations and communicate updates to patient communities.
  • Participate in advocacy forums and discussions to raise awareness of Orsini's services.
  • Coordinate with other patient advocates to share insights and learnings.

Orsini Specialty Pharmacy logo
Orsini Specialty Pharmacy Pharmaceuticals SME https://www.orsinispecialtypharmacy.com/
See all jobs

Job description

Description

About Orsini Rare Disease Pharmacy Solutions 
Providing compassionate care since 1987, Orsini is a leader in rare disease and gene therapy pharmacy solutions, built to simplify how patients connect to advanced medicines. Through our comprehensive commercialization solutions including a nationwide specialty pharmacy, patient services hub, home infusion and nursing network, and third-party logistics provider, we work with biopharma, providers, and payors to ensure No Patient is Left Behind™.
 
Our Mission 
Orsini is on a mission to be the essential partner for biopharma innovators, healthcare providers, and payers to support patients and their families in accessing revolutionary treatments for rare diseases. Through our integrated portfolio of services, we seek to pioneer comprehensive solutions that simplify how patients connect to advanced therapies while providing holistic, compassionate care so that No Patient is Left Behind™.  
 
LIVE IT Values 
At the heart of our company culture, the Orsini LIVE IT core values serve as guiding principles that shape how we interact with each other and those we serve. These values are the driving force behind our commitment to excellence, collaboration, and genuine care in every aspect of our work.  
 
Leading Quality, Integrity, Valued Partner, Empathy, Innovation, Team-First 
Salary Range: $35,368-$54,000
Part Time- 20 hours a week
 
POSITION SUMMARY
Our company motto is No Patient left Behind. At Orsini, this means it is critical for us to engage our patients, families, caregivers and community advocates to understand their challenges and desires so we can adapt our efforts and services accordingly.
 
The Patient Advocate will be responsible for proactively engaging with the hypoparathyroidism community and building enduring relationships with key patient advocacy organizations, community leaders and directly with patients. This individual will continuously lead efforts that reinforce a patient- focused culture and collaborate cross-functionally within Orsini operational departments ( payor, operations, clinical) to drive to best-in-class patient experience.

REQUIRED KNOWLEDGE, SKILLS & TRAINING 
  • 2+ years of pharmacy, customer service or healthcare experience 
  • Knowledge or experience with hypoparathyroidism  
  • Demonstrated ability to build relationships with patient advocacy organizations, professional associations or individuals living with rare disease conditions 
  • Strong written, verbal and presentation communication skills; the candidate should be flexible, personable and easily collaborate with colleagues and advocates 
  • A passion for helping patient communities 
  • Ability to travel 10-15% (sometimes on weekends)
ESSENTIAL JOB DUTIES 
  • 30% Establish and/or further develop relationships with hypoparathyroidism community including patients, families, caregivers and advocacy organizations. Provide structured insights and reports to Orsini leadership. 
  • 30% Collaborate with internal Orsini teams to help prioritize opportunities to improve operations and communicate key updates and learnings to patient communities.  
  • 20% Expand patient awareness of Orsini by participating in advocacy forum discussions about specialty pharmacies and through partnerships with foundations  
  • 15% Participate both virtually and live in key therapy specific foundation meetings and events  
  • 5% Coordinate with Orsini patient advocates in other therapies to share key learnings and insights
 
EMPLOYEE BENEFITS 
  • BCBSL Medical
  • Delta Dental
  • EyeMed Vision
  • 401k
  • Accident & Critical Illness
  • Life Insurance
  • PTO, Holiday Pay, and Floating Holidays
  • Tuition Reimbursement

Required profile

Experience

Industry :
Pharmaceuticals
Spoken language(s):
English
Check out the description to know which languages are mandatory.

Hard Skills

Hospital ExperiencePatient Education And CounselingHypothyroidismPresentation Training

Other Skills

  • Relationship Building
  • Communication
  • Customer Service
  • Collaboration
  • Empathy
  • Teamwork
  • Physical Flexibility
Are you interested?

Related jobs

See more jobs